As you may have seen by now this month I have been support Lupus Awareness Month by having the badge in the sidebar. If you haven’t clicked it yet it would mean alot to me if you did. While I know the badge has helped a tiny bit I feel that I haven’t done enough for this huge cause.
It’s not something I mention every day on the blog but on 4th November 2005 I was diagnosed with Systemic Lupus, since then my life has changed dramatically. Even the smallest things are a challenge some days. The asiest way to describe the illness is that in the way a normal immune system fights off infections, a Lupies immune system cannot differentiate between what should be in the body and what shouldn’t. This means that our defences can try to attack bone marrow, tissue, organs and muscle. There is no cure for Lupus but it can be controlled. Lupus is known as the mimicking disease as it can emulate other illnesses such as Leukaemia (this was the case for me) so this can delay diagnosis. For more information on Lupus and the symptoms please visit Lupusuk.org
People who have Lupus often have a red rash across their nose and cheeks that resembles a butterfly, which is why the symbol of Lupus is a butterfly. As 4th November is a big day for me I hope that you will all join me in Butterfly day, displaying butterflies proudly and spreading the knowledge. You can do this by:
- wearing a butterfly in your hair
- painting a butterfly on your face
- decorating your college folder etc with butterflies
- drawing a butterfly on your hand
- wearing butterfly wings
- wearing a floaty dress/ top in sparkly colours like a butterfly
On top of this you could also post about your day on your blog and link it to the post that will be on my blog that day. If you’re getting involved leave me a comment or email
Knowledge is power and you just might help a diagnosis.
thanks and love as always