Last week I announced that today I was holding Butterfly Day but I never expected the amazing response I received. If you’ve never head of Lupus or the symptoms please Take a look at the Lupus Uk site
Today is quite a big day for me, five years ago on 4th November I was diagnosed with Lupus. Like a lot of chronic illnesses their is no cure for Lupus but it can be controlled with medication. The key to helping people cope and to raise awareness though is knowledge. So that’s why I decided that today instead of moping about the fact that this has happened I decided to celebrate that I am alive. Because I’m lucky enough to have some lovely readers and fashion friends, today was a big success.
I was at college all day so I couldn’t wear big fairy wings like I’d have loved to so instead I wore the floatiest dress I owned; this mink floral one and lacy tights. I found this lovely brooch in Past Times in Newcastle last week and couldn’t resist buying it. This is technically my sister’s hand but I drew the butterfly with eye liner. I use this London Notebook for making fashion notes when I get a sudden surge of inspiration, it seems a little butterfly landed on it though.
As I mentioned my lovely friends and family got involved too, even my aunt who dislikes butterflies! Here’s some of their lovely posts
My dear Sarah wrote lyrics from She’s a butterfly by Martina McBride along with her butterflies, and yes there are two because as she says “because Rachel is not alone. I don’t have Lupus, but I still suport her!”
Sarah also thought one butterfly wasn’t enough so even though she had Ecology lectures and practicals she wore all these butterflies!
Leia’s home came under seige by a little fluttering creature. You can see more images and a lovely outfit post on her blog
Like me, Amy CT has a red rash on her face and neck- but this is as she has Psoriasis. When I tweeted that I wasn’t covering my butterfly rash with make up today she stood by me and said she wouldn’t cover up her rash either. More than anything today is about being proud of who I am so I’m happy this has spread to Amy too.
Susie showed us some of her favourite butterfly inspired things, check out her post for lots of lovely pictures too
Sarah from Bliss Bubbley found this cute temporary tattoo!
This one really choked me up, my cousin S who is still in secondary school got some of her friends involved and they all drew coloured butterflies on their hands. Her friends have never even met me but when they were all asked what the butterflies were for they happily spread the Lupus story. Who say’s all teens are thoughtless?
And finally a couple of friends tweeted me the butterflies they have proudly sported
I want to thank everyone who got involved even in the slightest way. You’ve really helped raise awareness for Lupus.
I didn’t want to mention this but I’m disgusted that I have received a few negative comments about this, I’m proud of any small contribution I have made to raising awareness of Lupus no matter what.